The SVIN Registry
Welcome to the SVIN Registry. The SVIN Registry was created due to the perceived need for an independent and high-quality surveillance system to assess the real-world clinical characteristics, procedural variables, and outcomes of patients with large vessel occlusion acute ischemic strokes (LVOS). Additionally, it was designed to provide a useful tool for hospitals to analyze, report, and improve quality of patient care at a local level.
Below you can find a descriptions of the necessary steps for site activation and information regarding the project progress. Please do not hesitate contacting us for further discussions or clarifications.
Requirements for Activation/Site Functionality:
- Identification/Designation of a Physician Representative and a Data Abstractor.
- Local IRB project approval.
- Installation of SVIN Registry data dictionary at the local REDCap.
- Development of a data-user agreement with the data coordinating center.
Data Entry/Systematic Quality Checks:
The SVIN Registry platform utilizes REDCap, a browser-based, meta-driven electronic-data capture software for designing and maintaining a research database. Sites prospectively deposit data locally into REDCap. Data is systematically exported and checked for quality, centrally, by the data coordinating center. The SVIN Registry encompasses collection of mandatory and optional variables as part of a very detailed database.
Previously-Existing Local Database?
The SVIN and the SVIN Registry may be able to support re-coding of your previously existing database to match the data vocabulary utilized by the SVIN Registry REDCap project (allowing for data merge).
Contact for any inquiries:
Diogo Haussen Raul Nogueira David Liebeskind